Psychosocial aspects of caregivers of children with cancer: stress and coping

Authors

  • Ana Maria DEL BIANCO FARIA Universidade de São Paulo
  • Carmen Lúcia CARDOSO Universidade de São Paulo

Keywords:

Caregivers, Stress, Neoplasms

Abstract

The purpose of this study was to assess the level of stress experienced by caregivers of children with leukemia, the coping strategies they use and to characterize the affective experience towards falling ill. Twenty caregivers participated in the study, which took
place one year after the children began treatment. The following instruments were used: Lipp’s Adult Stress Symptoms Inventory, Coping Strategy Inventory, and a supplementary script. It was found that 50% of the participants experienced stress, most were in
the resistance phase and showed psychological symptoms. Higher income was associated with stress (p=0.02). The major coping strategies used were “problem solving” and “escape and avoidance”. A greater use of the “acceptance of responsibility” strategy was associated with the presence of stress (p=0.04) and not practicing a religion (p=0.003). The analysis of the interviews enabled a grouping into four categories. In conclusion, the caregiver needs support with a view to improving his/her quality of life and to making children feel more welcome.

Downloads

Download data is not yet available.

References

Bardin, L. (1979). Análise de conteúdo Lisboa: Edições 70.

Bradford, R. (1997). Children, families and chronic disease. London: Routledge.

Brasil. Ministério da Saúde. (2008). Instituto Nacional do Câncer. Recuperada em maio, 2008, disponível em http://www.inca.org.br/cancer

Fayram, E. S., & Christensen, P. J. (1995). Planning: strategies and nursing orders. In P. J. Christensen & J. W. Kenney. Nursing process: application of conceptual models (pp.164-185). St. Louis: Mosby.

Françoso, L. P. C., & Valle, E. R. M. (1999). A Criança com câncer: estudo preliminar. Pediatria Moderna, 35 (5), 320-331.

Guido, L. A. (2003). Stress e coping entre enfermeiros de centro cirúrgico e recuperação anestésica Tese de doutorado não-publicada, Escola de Enfermagem, Universidade de São Paulo.

Kazak, A. E., Alderfer, M., Rourke, M. T., Simms, S., Streisand, R., & Grossman, J. R. (2004). Posttraumatic stress disorder (PTSD) and posttraumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. Journal of Pediatric Psychology, 29 (3), 211-219.

Kazak, A. E., Boeving, C. A., Alderfer, M., Hwang, W-T, & Reilly, A. (2005). Posttraumatic stress symptoms during treatment in parents of children with cancer. Journal Clinical Oncology, 23 (30),7405-7410.

Klassmann, J., Kochia, K. R. A, Furukawa, T. S., Higarashi, I. H., & Marcon, S. S. (2008). Experiência de mães de crianças com leucemia: sentimentos acerca do cuidado domiciliar. Revista da Escola de Enfermagem USP, 42 (2), 321-330.

Knafl, K. A., & Deatrick, J. A. (2003). Further refinement of the family management style framework. Journal of Family Nursing, 9 (3), 232-56.

Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping New York: Sringer Publishing Company.

Lipp, M. E. N. (1996). Stress: conceitos básicos. In M. E. N. Lipp (Ed.), Pesquisas sobre stress no Brasil: saúde, ocupações e grupos de risco (pp.17-31). São Paulo: Papirus.

Lipp, M. E. N. (2000). Manual do Inventário de Sintomas de Stress para Adultos de Lipp. São Paulo: Casa do Psicólogo.

Lipp, M. E. N., & Malagris, L. N. (1998). Manejo do estresse. In: B. Rangè (Org.), Psicoterapia comportamental e cognitiva: pesquisa, prática, aplicações e problemas (pp.279-292). São Paulo: Editora PSY.

Menezes, C. N. B., Passareli., P. M., Drude, F. S., Santos, M. A., & Valle, E. R. M. (2007). Câncer infantil: organização familiar e doença. Revista Mal Estar e Subjetividade, 7 (1), 191-210.

Northouse, L. L., & Peters-Golden, H. (1993). Cancer and the family: strategies to assist spouses. Seminars in Oncology Nursing, 9 (2), 74-82.

Patterson, J. M., Holm, E. K., & Gurney, J. G. (2004). The impact of childhood cancer on the family: a qualitative analysis of strains, resources, and coping behaviors. Psycho-Oncology, 13 (6), 390-407.

Patiño-Fernandez, A. M., Pai, A. L. H., Alderfer, M., Hwang, W-T., Reilly, A., & Kazak, A. E. (2008). Acute stress in parents of children newly diagnosed with cancer. Pediatric Blood & Cancer, 50 (2), 289-292.

Savoia, M. G. (1999). Escala de eventos vitais e de estratégias de enfrentamento (Coping). Revista de Psiquiatria Clínica, 26 (2), 57-67.

Sapolsky, R. M. (1994). Why zebras don't get ulcers: a guide to stress, stress-related diseases, and coping. New York: W.H. Freeman and Company.

Selye, H. (1956). The stress of life. New York: Longmans.

Selye, H. (1983). The Stress Concept: past, present and future. In C. L. Cooper (Ed.), Stress reserarch: issues for the eighties (pp.1-20). New York: John Wiley and Sons.

Ulysses de Carvalho, C. S. (2008). A necessária atenção à família do paciente oncológico. Revista Brasileira de Cancerologia, 54 (1), 97-102.

Valle, E. R. M., & Françoso, L. P. C. (1999). Câncer infantil: algumas informações. In E. R. M. Valle & L. C. Françoso. Psico-oncologia pediátrica: vivências da criança com câncer (pp.15-18). Ribeirão Preto: Scala.

Yin L. K., & Twinn S. (2004) The effect of childhood cancer on Hong Kong Chinese families at different stages of the disease. Cancer Nursing, 27 (1),17-24.

Published

2010-03-30

How to Cite

DEL BIANCO FARIA, A. M. ., & CARDOSO, C. L. . (2010). Psychosocial aspects of caregivers of children with cancer: stress and coping. Psychological Studies, 27(1). Retrieved from https://periodicos.puc-campinas.edu.br/estpsi/article/view/7121