Apoiando a parentalidade relacionada com a saúde: uma revisão abrangente dos programas assistidos pela Internet e tecnologias relacionadas
Palavras-chave:
Saúde, Tecnologia da informação, Responsabilidade parental, Programas, RevisãoResumo
Intervenções de eSaúde foram propostas para superar obstáculos relacionados com baixas taxas de adesão, baixa acessibilidade e custos elevados. Devido à diversidade de intervenções existentes, este estudo objetivou conduzir uma revisão abrangente das intervenções parentais para apoiar os pais nas tarefas relacionadas com a saúde e a doença dos filhos. A revisão abrangente encontrou 119 programas baseados em tecnologia, tanto direcionados para objetivos universais e preventivos, quanto para a gestão e adaptação a condições de saúde graves, crônicas ou agudas. Uma diversidade de aplicações foi utilizada de forma criativa em intervenções parentais. A maioria dos programas utiliza metodologias psicológicas baseadas em evidências para promover a autogestão, treinar habilidades parentais específicas e oferecer feedback personalizado e apoio social. São necessárias mais investigações para avaliar a contribuição da Internet e das aplicações móveis para aumentar a eficácia das intervenções parentais relacionadas com a saúde e a divulgação de programas empiricamente validados.
Downloads
Referências
Adams, W. G., Phillips, B. D., Bacic, J. D., Walsh, K. E., Shanahan, C. W., & Paasche-Orlow, M. K. (2014). Automated conversation system before pediatric primary care visits: A randomized trial. Pediatrics, 134(3), e691-e699. https://doi.org/10.1542/peds.2013-3759
Antonini, T. N., Raj, S. P., Oberjohn, K. S., & Wade, S. L. (2012). An online positive parenting skills programme for paediatric traumatic brain injury: Feasibility and parental satisfaction. Journal of Telemedicine and Telecare, 18(6), 333-338. https://doi.org/10.1258/jtt.2012.120404
Arksey, H., & Malley, L. O. (2005). Scoping studies: Towards a methodological framework. The International Journal of Social Research Methodology, 8(1), 19-32. https://doi.org/10.1080/1364557032000119616
Armbrust, W., Bos, J. J. F. J., Cappon, J., van Rossum, M. A. J. J., Sauer, P. J. J., Wulffraat, N., … Lelieveld, O. T. H. M. (2015). Design and acceptance of Rheumates@Work, a combined internet-based and in person instruction model, an interactive, educational, and cognitive behavioral program for children with juvenile idiopathic arthritis. Pediatric Rheumatology Online Journal, 13, 31. https://doi.org/10.1186/s12969-015-0029-5
Armstrong, R., Hall, B. J., Doyle, J., & Waters, E. (2011). Cochrane update “scoping the scope” of a cochrane review. Journal of Public Health, 33(1), 147-150.
Baranowski, T., Baranowski, J. C., Cullen, K. W., Thompson, D. I., Nicklas, T., Zakeri, I. F., & Rochon, J. (2003). The Fun, Food, and Fitness Project (FFFP): The Baylor GEMS pilot study. Ethnicity & Disease, 13(Suppl.1), 30-39.
Bayley, J. E., & Brown, K. E. (2015). Translating group programmes into online formats: Establishing the acceptability of a parents’ sex and relationships communication serious game. BMC Public Health, 15(1), 1225. https://doi.org/10.1186/s12889-015-2545-0
Beltran, A., O’Connor, T., Hughes, S., Baranowski, J., Nicklas, T. A., Thompson, D., & Baranowski, T. (2012). Alpha test of a videogame to increase children’s vegetable consumption. Games for Health Journal, 1(3), 219-221. https://doi.org/10.1089/g4h.2011.0027
Bensink, M., Wootton, R., Irving, H., Hallahan, A., Theodoros, D., Russell, T., … Barnett, A. G. (2007). Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: Design of a randomised controlled trial. BMC Health Services Research, 7(38), 1-8. https://doi.org/10.1186/1472-6963-7-38
Bonnert, M., Ljótsson, B., Hedman, E., Andersson, J., Arnell, H., Benninga, M. A., … Serlachius, E. (2014). Internet-delivered cognitive behavior therapy for adolescents with functional gastrointestinal disorders: An open trial. Internet Interventions, 1(3), 141-148. https://doi.org/10.1016/j.invent.2014.07.002
Bragadóttir, H. (2008). Computer-mediated support group intervention. Journal of Nursing Scholarship, 40(1), 32-38.
Brown, P. C., Dunn, M. E., & Budney, A. J. (2014). Development and initial evaluation of a web-based program to increase parental awareness and monitoring of underage alcohol use: A brief report. Journal of Child & Adolescent Substance Abuse, 23(2), 109-115. https://doi.org/10.1080/1067828X.2012.750553
Campbell, K. J., Hesketh, K. D., McNaughton, S. A., Ball, K., McCallum, Z., Lynch, J., & Crawford, D. A. (2016). The extended Infant Feeding, Activity and Nutrition Trial (InFANT Extend) program: A cluster-randomized controlled trial of an early intervention to prevent childhood obesity. BMC Public Health, 16(1), 166. https://doi.org/10.1186/s12889-016-2836-0
Carlson Gielen, A., McKenzie, L., McDonald, E. M., Shields, W. C., Wang, M. C., Cheng, Y. J., … Walker, A. R. (2007). Using a computer kiosk to promote child safety: Results of a randomized, controlled trial in an urban pediatric emergency department. Pediatrics, 120(2), 330-339.
Chen, J. L., Weiss, S., Heyman, M. B., Cooper, B., & Lustig, R. H. (2011). The efficacy of the web-based childhood obesity prevention program in Chinese American adolescents (Web ABC Study). Journal of Adolescent Health, 49(2), 148-154. https://doi.org/10.1016/j.jadohealth.2010.11.243
Clarke, S. A., Calam, R., Morawska, A., & Sanders, M. (2013). Developing web-based Triple P “Positive Parenting Programme” for families of children with asthma. Child: Care, Health and Development, 40(4), 492-497. https://doi.org/10.1111/cch.12073
Cook, F., Seymour, M., Giallo, R., Cann, W., Nicholson, J. M., Green, J., & Hiscock, H. (2015). Comparison of methods for recruiting and engaging parents in online interventions: Study protocol for the cry baby infant sleep and settling program. BMC Pediatrics, 15, 174. https://doi.org/10.1186/s12887-015-0502-9
Cowden, J., Wilkerson-Amendell, S., Weathers, L., Gonzalez, E., Dinakar, C., Westbrook, D., & Williams, A. (2015). The talking card: Randomized controlled trial of a novel audio-recording tool for asthma control. Allergy and Asthma Proceedings, 36(5), 86-91.
Curtis, K. E., Lahiri, S., & Brown, K. E. (2015). Targeting parents for childhood weight management: Development of a theory-driven and user-centered healthy eating app. JMIR mHealth and uHealth, 3(2), e69. https://doi.org/10.2196/mhealth.3857
Cushing, C. C., & Steele, R. G. (2010). A meta-analytic review of ehealth interventions for pediatric health promoting and maintaining behaviors. Journal of Pediatric Psychology, 35(9), 937-949.
Delamater, A. M., Pulgaron, E. R., Rarback, S., Hernandez, J., Carrillo, A., Christiansen, S., & Severson, H. H. (2013). Web-based family intervention for overweight children: A pilot study. Childhood Obesity, 9(1), 57-63. https://doi.org/10.1089/chi.2011.0126
Delisle, C., Sandin, S., Forsum, E., Henriksson, H., Trolle-Lagerros, Y., Larsson, C., … Löf, M. (2015). A web- and mobile phone-based intervention to prevent obesity in 4-year-olds (MINISTOP): A population-based randomized controlled trial. BMC Public Health, 15(1), 95. https://doi.org/10.1186/s12889-015-1444-8
Doherty, F., Calam, R., & Sanders, M. R. (2013). Positive Parenting Program (Triple P) for families of adolescents with type 1 diabetes: A randomized controlled trial of self-directed teen Triple P. Journal of Pediatric Psychology, 38(8), 846-858.
Domek, G. J., Contreras-Roldan, I. L., O’Leary, S. T., Bull, S., Furniss, A., Kempe, A., & Asturias, E. J. (2016). SMS text message reminders to improve infant vaccination coverage in Guatemala: A pilot randomized controlled trial. Vaccine, 34(21), 2437-2443. https://doi.org/10.1016/j.vaccine.2016.03.065
Ewing, L. J., Long, K., Rotondi, A., Howe, C., Bill, L., & Marsland, A. L. (2009). Brief report: A pilot study of a web-based resource for families of children with cancer. Journal of Pediatric Psychology, 34(5), 523-529. https://doi.org/10.1093/jpepsy/jsn096
Eysenbach, G. (2001). What is e-health? Journal of Medical Internet Research, 3(2), e20. https://doi.org/10.2196/jmir.3.2.e20
Fang, L., & Schinke, S. P. (2013). Two-year outcomes of a randomized, family-based substance use prevention trial for Asian American adolescent girls. Psychology of Addictive Behaviors, 27(3), 788-798. https://doi.org/10.1037/a0030925
Fidika, A., Herle, M., Lehmann, C., Weiss, C., Knaevelsrud, C., & Goldbeck, L. (2015). A web-based psychological support program for caregivers of children with cystic fibrosis: A pilot study. Health and Quality of Life Outcomes, 13, 11. https://doi.org/10.1186/s12955-015-0211-y
Field, M. J., & Grigsby, J. (2002). Telemedicine and remote patient monitoring. Journal of the American Medical Association, 288(4), 423-425.
Fox, S. (2005). Digital divisions. Pew Internet & American Life Project. Retrieved January 18, 2017, from http://www.pewinternet.org/2005/10/05/digital-divisions/
Gruver, R. S., Bishop-Gilyard, C. T., Lieberman, A., Gerdes, M., Virudachalam, S., Suh, A. W., … Fiks, A. (2016). A social media peer group intervention for mothers to prevent obesity and promote healthy growth from infancy: Development and pilot trial. JMIR Research Protocols, 5(3), e159.
Hall, C. M., & Bierman, K. L. (2015). Technology-assisted interventions for parents of young children: Emerging practices, current research, and future directions. Early Childhood Research Quarterly, 33, 21-32.
Harris, M. A., Freeman, K. A., & Duke, D. C. (2015). Seeing is believing: Using Skype to improve diabetes outcomes in youth. Diabetes Care, 38(8), 1427-1434. https://doi.org/10.2337/dc14-2469
Hoghughi, M. (1998). The importance of parenting in child health. Doctors as well as the government should do more to support parents. BMJ, 316(7144), 1545. https://doi.org/10.1136/bmj.316.7144.1545
Horodynski, M. A., Silk, K., Hsieh, G., Hoffman, A., & Robson, M. (2015). Tools for teen moms to reduce infant obesity: A randomized clinical trial. BMC Public Health, 15, 1-9. https://doi.org/10.1186/s12889-015-1345-x
Jones, D. J. (2014). Future directions in the design, development, and investigation of technology as a service delivery vehicle. Journal of Clinical Child & Adolescent Psychology, 43(1), 128-142. https://doi.org/10.1080/15374416.2013.859082
Jones, D. J., Forehand, R., Cuellar, J., Kincaid, C., Parent, J., Fenton, N., & Goodrum, N. (2013). Harnessing innovative technologies to advance children’s mental health: Behavioral parent training as an example. Clinical Psychology Review, 33(2), 241-252. https://doi.org/10.1016/j.cpr.2012.11.003
Kahana, S., Drotar, D., & Frazier, T. (2008). Meta-analysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditions. Journal of Pediatric Psychology, 33(6), 590-611. https://doi.org/10.1093/jpepsy/jsm128
Knapp, C., Madden, V., Wang, H., Sloyer, P., & Shenkman, E. (2011). Internet use and eHealth literacy of low-income parents whose children have special health care needs. Journal of Medical Internet Research, 13(3), 1-13. https://doi.org/10.2196/jmir.1697
Kohl, P., Schurer, J., & Bellamy, J. (2009). The state of parent training: Program offerings and empirical support. Families in Society: The Journal of Contemporary Social Services, 90(3), 248-254.
Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5, 69. https://doi.org/10.1186/1748-5908-5-69
Levy, R. L., Langer, S. L., Walker, L. S., Romano, J. M., Christie, D. L., Youssef, N., … Whitehead, W. E. (2010). Cognitive-behavioral therapy for children with functional abdominal pain and their parents decreases pain and other symptoms. Journal of Gastroenterology, 105(4), 946-956. https://doi.org/10.1038/ajg.2010.106
MacDonell, K. W., & Prinz, R. J. (2016). A review of technology-based youth and family-focused interventions. Clinical Child and Family Psychology Review, 1-16. https://doi.org/10.1007/s10567-016-0218-x
Maddison, R., Marsh, S., Foley, L., Epstein, L. H., Olds, T., Dewes, O., … Mhurchu, C. N. (2014). Screen-time weight-loss intervention targeting children at home (switch): A randomized controlled trial. The International Journal of Behavioral Nutrition and Physical Activity, 11(1), 111. https://doi.org/10.1186/s12966-014-0111-2
Madge, C., & O’Connor, H. (2006). Parenting gone wired: Empowerment of new mothers on the internet? Social & Cultural Geography, 7(2), 199-220. https://doi.org/10.1080/14649360600600528
Martin, S., Roderick, M. C., Lockridge, R., Toledo-Tamula, M. A., Baldwin, A., Knight, P., & Wolters, P. (2016). Feasibility and preliminary efficacy of an internet support group for parents of a child with neurofibromatosis type 1: A pilot study. Journal of Genetic Counseling, 1-10. https://doi.org/10.1007/s10897-016-0031-1
Mays, N., Roberts, E., & Popay, J. (2001). Synthesising research evidence. In N. Fulop, P. Allen, A. Clarke, & N. Black (Eds.), Studying the organisation and delivery of health services: Research methods (pp.188-220). London: Routledge.
Merkel, R. M., & Wright, T. (2012). Parental self-efficacy and online support among parents of children diagnosed with type 1 diabetes mellitus. Pediatric Nursing, 38(6), 303-308. Retrieved from December 17, 2016, from http://www.ncbi.nlm.nih.gov/pubmed/23362628
Militello, L., Melnyk, B. M., Hekler, E. B., Small, L., & Jacobson, D. (2016). Automated behavioral text messaging and face-to-face intervention for parents of overweight or obese preschool children: Results from a pilot study. JMIR mHealth and uHealth, 4(1), e21. https://doi.org/10.2196/mhealth.4398
Nezami, B. T., Lytle, L. A., & Tate, D. F. (2016). A randomized trial to reduce sugar-sweetened beverage and juice intake in preschool-aged children: Description of the Smart Moms intervention trial. BMC Public Health, 16(1), 837. https://doi.org/10.1186/s12889-016-3533-8
Nieto, R., Hernández, E., Boixadós, M., Huguet, A., Beneitez, I., & McGrath, P. (2015). Testing the feasibility of DARWeb: An online intervention for children with functional abdominal pain and their parents. The Clinical Journal of Pain, 31(6), 493-503. https://doi.org/10.1097/AJP.0000000000000199
Nkoy, F. L., Stone, B. L., Fassl, B. A., Koopmeiners, K., Halbern, S., Kim, E. H., … Maloney, C. G. (2012). Development of a novel tool for engaging children and parents in asthma self-management. AMIA Annual Symposium Proceedings, 2012, 663-672.
O’Connor, A., Bennett, C., Stacey, D., Barry, M., Col, N., Eden, K., … Rovner, D. (2009). Decision aids for people facing health treatment or screening decisions. The Cochrane Database of Systematic Review, 3, CD001431. https://doi.org/10.1002/14651858.CD001431.pub2
Pagliari, C., Sloan, D., Gregor, P., Sullivan, F., Detmer, D., Kahan, J. P., … MacGillivray, S. (2005). What is eHealth (4): A scoping exercise to map the field. Journal of Medical Internet Research, 7(1), 1-20. https://doi.org/10.2196/jmir.7.1.e9
Palermo, T. M., Law, E. F., Fales, J., Bromberg, M., Jessen-Fiddick, T., & Gabrielle, T. (2016). Internet-delivered cognitive-behavioral treatment for adolescents with chronic pain and their parents: A randomized controlled multicenter trial. Pain, 157(1), 174-185.
Palermo, T. M., Wilson, A. C., Peters, M., Lewandowski, A., & Somhegyi, H. (2009). Randomized controlled trial of an internet delivered family cognitive behavioral therapy intervention for children and adolescents with chronic pain. Pain, 146(1-2), 205-213. https://doi.org/10.1016/j.pain.2009.07.034
Ritterband, L. M., & Palermo, T. M. (2009). Introduction to the special issue: eHealth in pediatric psychology. Journal of Pediatric Psychology, 34(5), 453-456. https://doi.org/10.1093/jpepsy/jsp008
Seeber, L., Conrad, T., Hoppe, C., Obermeier, P., Chen, X., Karsch, K., … Rath, B. (2017). Educating parents about the vaccination status of their children: A user-centered mobile application. Preventive Medicine Reports, 5, 241-250. https://doi.org/10.1016/j.pmedr.2017.01.002
Stark, L. J., Opipari-Arrigan, L., Filigno, S. S., Simon, S. L., Leonard, A., Mogayzel, P. J., … Powers, S. W. (2015). Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial. Journal of Pediatric Psychology, 41(5), 1-12. https://doi.org/10.1093/jpepsy/jsv108
Starling, R., Nodulman, J. A., Kong, A. S., Wheeler, C., Buller, D. B., & Woodall, W. G. (2014). Beta-test results for an HPV information web site: GoHealthyGirls.org – Increasing HPV vaccine uptake in the United States. Journal of Consumer Health on the Internet, 18(3), 226-237.
Stewart, M., Letourneau, N., Masuda, J. R., Anderson, S., & McGhan, S. (2011). Online solutions to support needs and preferences of parents of children with asthma and allergies. Journal of Family Nursing, 17(3), 357-379. https://doi.org/10.1177/1074840711415416
Stinson, J., McGrath, P., Hodnett, E., Feldman, B., Duffy, C., Huber, A., … White, M. (2010). An internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial. The Journal of Rheumatology, 37(9), 1944-1952.
Wantland, D. J., Portillo, C. J., Holzemer, W. L., Slaughter, R., & McGhee, E. M. (2004). The effectiveness of web-based vs. non-web-based interventions: A meta-analysis of behavioral change outcomes. Journal of Medical Internet Research, 6(4), e40. https://doi.org/10.2196/jmir.6.4.e40
Whyte, K. L., & Hunter, I. (2008). Internet access, utilisation and perception by parents. Archives of Disease in Childhood, 93(5), 448-449.
Downloads
Publicado
Como Citar
Edição
Seção
Licença
Copyright (c) 2023 Luísa BARROS, Klara GREFFIN
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.