Estilos parentais e coparentalidade em famílias de crianças com autismo: análise de perfis de comportamento infantil
Palavras-chave:
Autism spectrum disorder, Child behavior, Family relations, ParentingResumo
Pesquisas sobre parentalidade em desenvolvimento atípico costumam investigar apenas a mãe, mesmo seus resultados apontando para a influência do estilo parental e do relacionamento com o pai na percepção de bem-estar da criança. Esta pesquisa objetivou compreender as relações entre o comportamento de crianças com Transtorno do Espectro Autista, os estilos parentais e o relacionamento coparental de 45 famílias biparentais com crianças com idade média de 59 meses em função dos perfis definidos a partir das diferenças comportamentais infantis. Os dados foram analisados por clusterização hierárquica. Dentre os quatro perfis encontrados, os que se caracterizavam por dificuldades comportamentais apresentaram estilos parentais mais autoritários/permissivos e impactos negativos na coparentalidade; aqueles com maior prossociabilidade evidenciaram um estilo parental mais autoritativo e uma melhor qualidade na coparentalidade. A avaliação comportamental da criança deve pautar a formulação de intervenções/políticas públicas de promoção de parentalidade positiva nessa população.
Downloads
Referências
American Psychological Association. (2014). Manual diagnóstico e estatístico de transtornos mentais: DSM-V. Porto Alegre: Artmed.
Baumrind, D. (1991) The influence of parenting style on adolescent competence and substance use. Journal of Early Adolescence, 11(1), 56-95. http://dx.doi.org/10.1177/0272431691111004
Baykal, S., Karakurt, M. N., Çakır, M., & Karabekiroğlu, K. (2018). An examination of the relations between symptom distributions in children diagnosed with autism and caregiver burden, anxiety and depression levels. Community Mental Health Journal, 55(2), 311-317. http://dx.doi.org/10.1007/s10597-018-0343-8
Bourke-Taylor, H., Howie, L., & Law, M. (2010). Impact of caring for a school-aged child with a disability: understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57, 127-136. http://dx.doi.org/10.1111/j.1440-1630.2009.00817.x
Boyd, M. J., Iacono, T., & McDonald, R. (2019). The perceptions of fathers about parenting a child with developmental disability: a scoping review. Journal of Policy and Practice in Intellectual Disabilities. http://dx.doi.org/10.1111/jppi.12287
Braunstein, V. L., Peniston, N., Perelman, A., & Cassano, M. C. (2013). The inclusion of fathers in investigations of autistic spectrum disorders. Research in Autism Spectrum Disorders, 7, 858-865. http://dx.doi.org/10.1016/j.rasd.2013.03.005
Camargo, S. P. H., & Bosa, C. A. (2012). Competência social, inclusão escolar e autismo: um estudo de caso comparativo. Psicologia: Teoria e Pesquisa, 28(3), 315-324. http://dx.doi.org/10.1590/S0102-37722012000300007
Carvalho, T. R., Barham, E. J., Souza, C. D., Böing, E., Crepaldi, M. A., & Vieira, M. L. (2018). Cross-cultural adaptation of an instrument to assess coparenting: coparenting relationship Scale. Psico-USF, 23(2), 215-227. http://dx.doi.org/10.1590/1413-82712018230203
Davys, D., Mitchell, D., & Martin, R. (2017). Fathers of people with intellectual disability: a review of the literature. Journal of Intellectual Disabilities, 21, 175-196. http://dx.doi.org/10.1177/1744629516650129
Dunn, M. E., Burbine, T., Bowers, C. A., & Tantless-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37, 39-52. http://dx.doi.org/10.1023/A:1026592305436
Faro, K. C. A., Santos, R. B., Bosa, C. A., Wagner, A., & Costa Silva, S. S. (2019). Autismo e mães com e sem estresse: análise da sobrecarga materna e do suporte familiar. Psico, 50(2), e30080. http://dx.doi.org/10.15448/1980-8623.2019.2.30080
Feinberg, M. E. (2003). The internal structure and ecological context of coparenting: a framework for research and intervention. Parenting: Science and Practice, 3(2), 95-131. http://dx.doi.org/10.1207/S15327922PAR0302_01
Feinberg, M. E., Brown, L. D., & Kan, M. L. (2012). A multi-domain self-report measure of coparenting. Parenting: Science and Practice, 12(1), 1-21. http://dx.doi.org/10.1080/15295192.2012.638870
Fleitlich, B., Cortázar, P. G., & Goodman, R. (2000). Questionário de capacidades e dificuldades (SDQ). Infanto-Revista de Neuropsiquiatria da Infância e Adolescência, 8(1), 44-50.
Fombone, E. (2010). Epidemiology of autismo. Anais do 1º Encontro Brasileiro para Pesquisa em Autismo, Porto Alegre.
Frosch, C. A., Schoppe-Sullivan, S. J., & O’Banion, D. D. (2019). Parenting and child development: a relational health perspective. American Journal of Lifestyle Medicine, 22(2), 1-15. http://dx.doi.org/10.1177/1559827619849028
Gau, S. S., Chou, M., Lee, J., Wong, C., Chou, W., Chen, M., ... Wu, Y. (2010). Behavioral problems and parenting style among Taiwanese children with autism and their siblings. Psychiatry and Clinical Neurosciences, 64(1), 70-78. http://dx.doi.org/10.1111/j.1440-1819.2009.02034.x
Hall, H. R., & Graff, C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25. http://dx.doi.org/10.3109/014 60862.2011.555270
Hirsch, K. H., & Paquin, J. D. (2019). “The stress of the situation has changed us both”: a grounded theory analysis of the romantic relationship of parents raising children with autism. Journal of Child and Family Studies, 28, 2673-2689. http://dx.doi.org/10.1007/s10826-019-01448-y
Hirschler-Guttenberg, Y., Feldman, R., Ostfeld-Etzion, S., Laor, N., & Golan, O. (2015). Self- and co-regulation of anger and fear in preschoolers with autism spectrum disorders: the role of maternal parenting style and temperament. Journal of Autism and Developmental Disorders, 45, 3004-3014. http://dx.doi.org/10.1007/s10803-015-2464-z
James, G., Witten, D., Hastie, T., & Tibshirani, R. (2013). Clustering Methods. In G. James, An introduction to statistical learning: with applications in R (pp.385-396). New York: Springer.
Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883-893. http://dx.doi.org/10.1111/j.13652788.2006.00906.x
Maccoby, E. E., & Martin, J. (1983). Socialization in the context of the family: parent-child interaction. In E. M. Hetherington & P. H. Mussen (Ed.), Handbook of child psychology, socialization, personality and social development (pp.1-101). New York: Wiley.
Maljaars, J., Boonen, H., Lambrechts, G., Van Leeuwen, K., & Noens, I. (2014). Maternal parenting behavior and child behavior problems in families of children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 501-512. http://dx.doi.org/10.1007/s10803-013-1894-8
May, C., Fletcher, R. J., Dempsey, I., & Newman, L. K. (2015). Modeling relations among coparenting quality, autism-specific parenting self-efficacy, and parenting stress in mothers and fathers of children with ASD. Parenting, 15(2), 119-133. http://dx.doi.org/10.1080/15295192.2015.1020145
May, C., George, J. M., Fletcher, R. J., Dempsey, I., & Newman, L. K. (2017) Coparenting competence in parents of children with ASD: a marker of coparenting quality. Journal of Autism and Developmental Disorders, 47, 2969-2980. http://dx.doi.org/10.1080/15295192.2015.1020145
Ministério da Saúde (Brasil). (2012). Portaria nº 793, de 24 de abril de 2012. Institui a rede de cuidados à pessoa com deficiência no âmbito do Sistema Único de Saúde. Diário Oficial da União. Disponível em https://bvsms.saude.gov.br/bvs/saudelegis/gm/2012/prt0793_24_04_2012.html
Mosmann, C. P., Costa, C. B., Einsfeld, P., Silva, A. G. M., & Koch, C. (2017). Conjugalidade, parentalidade e coparentalidade: associações com sintomas externalizantes e internalizantes em crianças e adolescentes. Estudos de Psicologia (Campinas), 34(4), 487-498. http://dx.doi.org/10.1590/1982-02752017000400005
Pedro, M. F., Carapito, E., & Ribeiro, T. (2015). Parenting styles and dimensions questionnaire: versão portuguesa de autorrelato. Psicologia: Reflexão e Crítica, 28(2), 302-312. http://dx.doi.org/10.1590/1678-7153.201528210
Pereira, L. D., Canal, C. P. P., Corrêa, M. C. C. B., Silva, A. L. P., & Pimentel, S. G. (2018). Dificuldades de mães e de pais no relacionamento com crianças com Transtorno do Espectro Autista. Contextos Clínicos, 11(3), 351-360. http://dx.doi.org/10.4013/ctc.2018.113.06
Riany, Y. E., Cuskelly, M., & Meredith, P. (2017). Parenting style and parent-child relationship: a comparative study of Indonesian parents of children with and without Autism Spectrum Disorder (ASD). Journal of Child and Family Studies, 26(12), 3559-3571. http://dx.doi.org/10.1007/s10826-017-0840-3
Riany, Y. E., Cuskelly, M., & Meredith, P. (2019). Parenting style among Indonesian parents of children with Autism Spectrum Disorder: associations with socio-economic status and social supports. Journal of Developmental and Physical Disabilities, 31, 267-283. http://dx.doi.org/10.1007/s10882-018-9638-5
Saito, A., Stickley, A., Haraguchi, H., Takahashi, H., Ishitobi, M., & Kamio, Y. (2017). Association between autistic traits in preschool children and later emotional/behavioral outcomes. Journal of Autism and Developmental Disorders, 47, 3333-3346. http://dx.doi.org/10.1007/s10803-017-3245-7
Sifuentes, M., & Bosa, C. A (2010). Criando pré-escolares com autismo: características e desafios da coparentalidade. Psicologia em Estudo, 15(3), 477-485.
Sim, A., Cordier, R., Vaz, S., Netto, J., & Falkmer, T. (2017). Factors associated with negative co-parenting experiences in families of a child with autism spectrum disorder. Developmental Neurorehabilitation, 20(2), 83-91. http://dx.doi.org/10.3109/17518423.2015.1069414
Siu, Q. K., Yi, H., Chan, R. C., Chio, F. H., Chan, D. F., & Mak, W. W. (2019). The role of child problem behaviors in autism spectrum symptoms and parenting stress: a primary school-based study. Journal of Autism and Developmental Disorders, 49, 857-870. http://dx.doi.org/10.1007/s10803-018-3791-7
Thullen, M., & Bonsall, A. (2017). Co-parenting quality, parenting stress, and feeding challenges in families with a child diagnosed with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 47, 1-9. http://dx.doi.org/10.1007/s10803-016-2988-x
Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91-99. http://dx.doi.org/10.1111/j.1469-7610.2010.02295.x
Ventola, P., Lei, J., Paisley, C., Lebowitz, E., & Silverman, W. (2017). Parenting a child with ASD: comparison of parenting style between ASD, anxiety, and typical development. Journal of Autism and Developmental Disorders, 47, 2873-2884. http://dx.doi.org/10.1007/s10803-017-3210-5
Woolfson, L., & Grant, E. (2006). Authoritative parenting and parental stress in parents of pre-school and older children with developmental disabilities. Care, Health & Development, 32(2), 177-184. http://dx.doi.org/10.1111/j.1365-2214.2006.00603.x
World Health Organization (2017). Folha informativa: transtorno do espectro autista. Disponível em: https://www.paho.org/bra/index.php?Itemid=1098
Downloads
Publicado
Como Citar
Edição
Seção
Licença
Copyright (c) 2023 João Rodrigo Maciel PORTES, Mauro Luís VIEIRA, Carolina Duarte de SOUZA, Erikson KASZUBOWSKI
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
